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Grandview At Las Vegas
[triennial - points]
Thank You.
The doctor said, "I cannot imagine life without music & I know you can't either. I think we can help you." He divided the problem into 2 parts -- protecting the hearing that remains despite hearing loss, & making the most out of what I still have.
For hearing protection, the doctor recommended sound shields (which may or may not be practical for the ensembles I'm part of -- we'll see) & special musician ear plugs, custom-fitted to my ear canals, that provide more protection than over-the-counter plugs. I was fitted for those last week & should have them before Fairfax Band rehearsals resume next month. They will not only protect against exposure to loud sounds, they will also affect how I hear what I hear while playing, which the doctor & the audiologist both say will take some getting used to.
For tinnitus, the doctor recommended eliminating caffeine -- not cold turkey, but gradually. The mix I'm loading into Mr. Coffee in the morning is now 6 to 1 decaf, so I'm getting there. He also recommended ginkgo biloba, which he said is not proven to help nor FDA approved for that but which so many patients find helpful that he said it can't hurt to give it a try. (So far, no improvement from ginkgo biloba, but maybe it takes more time, I don't know.)
As another measure to help with tinnitus, the doctor prescribed a tranquilizer at an extremely low dose. The idea is not that the drug will reduce the tinnitus directly, but that it might make it less intrusive & less tension-building. He said not to take it if I'm going to drive -- which virtually means not to take it, because I drive at least a little practically every day, if only to Planet Fitness & back for alternating daily turns on the hamster wheel (bike & elliptical machine) & Nautilus weight machines. He did say that exercise can also help by promoting health & reducing tension -- good to know, I guess, although I haven't noticed any tinnitus improvement since I started daily exercise 2 years ago.
To hear more of what I'm missing due to irreversible hearing loss, the doctor said I might want to try high-tech digital hearing aids. They can help with those right there at Johns Hopkins, he said, although there are plenty of good audiologists closer to where I live so that I don't need to drive to Baltimore to get fitted. He did say it's important to get connected with an audiologist who understands the needs of musicians & who will be willing to work with me as long as it takes to get the adjustments right. Apparently hearing aids these days are remarkably advanced, with all sorts of tricky features like Blue Tooth wireless linkage to cell phones & iPods & concert venue sound-loop systems. Various settings can be tailored to my audio spectrum & loaded into memory as needed for everything from recital hall to rehearsal room to social gatherings. I guess I'll need to take'm out before I go swimming, & I doubt it's a good idea to wear'm while sleeping. No doubt the audiologist will coach me on that. From what I'm told, top-line feature-laden hearing aids do not come cheap, & until recently -- i.e., before I saw the doctor -- I have not been open minded about the idea of sticking electronic amplifiers in my ear holes. Now that I am warming up to the idea, I don't think I will mind the cost if the results are good.
Some of the people I know who wear advanced hearing aids use the over-ear type. The doctor said the in-ear kind, by contrast, can be designed to include hearing protection, so I'll ask about those when I take the hearing aid plunge.
The doctor said to come back in 6 months & maybe he'll order MRI of my brain because of the asymmetry in my hearing loss left to right & because tinnitus occurs in the brain rather than anywhere in the anatomy of the ears.
Even though the doctor offered no miraculous means of reversing my hearing loss & taking away my tinnitus, the encouragement & practical measures he outlined left me feeling better about my predicament & about the prospects for dealing with it better than I have been.
BTW, the audiologist who fitted me for musician earplugs no longer does clinical work, other than helping musicians & doing that out of her home. Her day job is in the halls of the speech & hearing national association, so maybe she can help steer me to a top practicing audiologist locally. A friend I've known since we were both GS-7s in the civil service already gave me the name & number of his audiologist, so that's a start.
Your good wishes & encouraging words are much appreciated.I hope you can get an accurate diagnosis and treatment that will help you.
The doctor said, "I cannot imagine life without music & I know you can't either. I think we can help you." He divided the problem into 2 parts -- protecting the hearing that remains despite hearing loss, & making the most out of what I still have.
For hearing protection, the doctor recommended sound shields (which may or may not be practical for the ensembles I'm part of -- we'll see) & special musician ear plugs, custom-fitted to my ear canals, that provide more protection than over-the-counter plugs. I was fitted for those last week & should have them before Fairfax Band rehearsals resume next month. They will not only protect against exposure to loud sounds, they will also affect how I hear what I hear while playing, which the doctor & the audiologist both say will take some getting used to.
For tinnitus, the doctor recommended eliminating caffeine -- not cold turkey, but gradually. The mix I'm loading into Mr. Coffee in the morning is now 6 to 1 decaf, so I'm getting there. He also recommended ginkgo biloba, which he said is not proven to help nor FDA approved for that but which so many patients find helpful that he said it can't hurt to give it a try. (So far, no improvement from ginkgo biloba, but maybe it takes more time, I don't know.)
As another measure to help with tinnitus, the doctor prescribed a tranquilizer at an extremely low dose. The idea is not that the drug will reduce the tinnitus directly, but that it might make it less intrusive & less tension-building. He said not to take it if I'm going to drive -- which virtually means not to take it, because I drive at least a little practically every day, if only to Planet Fitness & back for alternating daily turns on the hamster wheel (bike & elliptical machine) & Nautilus weight machines. He did say that exercise can also help by promoting health & reducing tension -- good to know, I guess, although I haven't noticed any tinnitus improvement since I started daily exercise 2 years ago.
To hear more of what I'm missing due to irreversible hearing loss, the doctor said I might want to try high-tech digital hearing aids. They can help with those right there at Johns Hopkins, he said, although there are plenty of good audiologists closer to where I live so that I don't need to drive to Baltimore to get fitted. He did say it's important to get connected with an audiologist who understands the needs of musicians & who will be willing to work with me as long as it takes to get the adjustments right. Apparently hearing aids these days are remarkably advanced, with all sorts of tricky features like Blue Tooth wireless linkage to cell phones & iPods & concert venue sound-loop systems. Various settings can be tailored to my audio spectrum & loaded into memory as needed for everything from recital hall to rehearsal room to social gatherings. I guess I'll need to take'm out before I go swimming, & I doubt it's a good idea to wear'm while sleeping. No doubt the audiologist will coach me on that. From what I'm told, top-line feature-laden hearing aids do not come cheap, & until recently -- i.e., before I saw the doctor -- I have not been open minded about the idea of sticking electronic amplifiers in my ear holes. Now that I am warming up to the idea, I don't think I will mind the cost if the results are good.
Some of the people I know who wear advanced hearing aids use the over-ear type. The doctor said the in-ear kind, by contrast, can be designed to include hearing protection, so I'll ask about those when I take the hearing aid plunge.
The doctor said to come back in 6 months & maybe he'll order MRI of my brain because of the asymmetry in my hearing loss left to right & because tinnitus occurs in the brain rather than anywhere in the anatomy of the ears.
Even though the doctor offered no miraculous means of reversing my hearing loss & taking away my tinnitus, the encouragement & practical measures he outlined left me feeling better about my predicament & about the prospects for dealing with it better than I have been.
BTW, the audiologist who fitted me for musician earplugs no longer does clinical work, other than helping musicians & doing that out of her home. Her day job is in the halls of the speech & hearing national association, so maybe she can help steer me to a top practicing audiologist locally. A friend I've known since we were both GS-7s in the civil service already gave me the name & number of his audiologist, so that's a start.
-- Alan Cole, McLean (Fairfax County), Virginia, USA.