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DD in hospital

Oh PJ --- I frequently think of your daughter and her struggle to be independent --- and the effect that has on you.

Thoughts and prayers with you and your family.

elaine
 
I see that you are from central PA. If you do not have 100% confidence in your daughter's doctors' abilities to determine the cause(s) of her medical problems, then I'd suggest an evaluation by doctors at one of the teaching hospitals in Philadelphia or Pittsburgh. Good Luck! Gary
 
Thoughts and prayers are with you. Hope they are able to figure out the root cause of her problems.
 
Our prayers are with Katy and with you. It must not be very much fun to watch your child suffer.
 
Just saw something on the news today about fainting may be related to a heart condition. But I'm sure she's been through a battery of tests and perhaps this has been ruled out. At any rate, I'm hoping for the best, and I know there's a lot of history here.
 
muranojo said:
Just saw something on the news today about fainting may be related to a heart condition. But I'm sure she's been through a battery of tests and perhaps this has been ruled out. At any rate, I'm hoping for the best, and I know there's a lot of history here.
Click to expand...

Yep, she's had tons of tests from cardiologists and neurologists. We need to see more specialists and even if they don't find the cause, getting the meds in balance will help. There have been times when she has gone 8 and 9 months with no syncopes at all....the common thread seems to be less activity.
 
pjrose said:
Yep, she's had tons of tests from cardiologists and neurologists. We need to see more specialists and even if they don't find the cause, getting the meds in balance will help. There have been times when she has gone 8 and 9 months with no syncopes at all....the common thread seems to be less activity.
Click to expand...

Please don't take this as being crass because it's not meant to be, but has your daughter seen a psychiatrist? This could be a type of conversion disorder. That would be more a diagnosis of exclusion, but it sounds like a great deal has been excluded already.

My prayers are with you in finding an answer.
 
Clemson Fan said:
Please don't take this as being crass because it's not meant to be, but has your daughter seen a psychiatrist? This could be a type of conversion disorder. That would be more a diagnosis of exclusion, but it sounds like a great deal has been excluded already.

My prayers are with you in finding an answer.
Click to expand...

Yes. It's not psychiatric. The cardio has documented 40 point drops in BP during syncope (e.g. during a stress test), and that is not psychiatric. Pulse rate goes up, BP goes up to a point, then vascular system and BP collapse and so does she.
 
pjrose said:
Yes. It's not psychiatric. The cardio has documented 40 point drops in BP during syncope (e.g. during a stress test), and that is not psychiatric. Pulse rate goes up, BP goes up to a point, then vascular system and BP collapse and so does she.
Click to expand...

Actually, that can be psychiatric. Our subconscious mind is a very powerful thing and it can produce actual real and measurable physical signs and symptoms. Syncope at the sight of blood is a well understood example of where the HR and BP drop (real and measurable physical signs) causing a person to faint based on a subconscious trigger.

A psychiatric evaluation should be a part of a complete evaluation for recurrent syncope that currently doesn't have a definite etiology. If I were her primary care doctor I would certainly recommend one at this point if she hasn't already had one.

Again, I'm not saying that this is psychiatric. All I'm saying is that an evaluation should be part of a complete work-up.

My best to you and your daughter.
 
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PJ, I wish you and your daughter all good things, and hope they can find the source of her problem.
I'd be very concerned with that low heart rate, and the BP crash. When my BP was dropping, and my heart rate was in the 40's, I was getting light headed & dizzy frequently. Scary. I hope all will be well soon. It has to be a terrible worry not knowing what dragon to slay...so to speak. ;)
 
Good Wishes

Our thoughts and prayers are with your family.....hoping you find answers and a solution to these problems soon.

Judy
 
So sorry to hear this as she had been doing so well! Best wishes on the neuro. If it's been 4 years since eval, maybe that now will show teh cause.

Best wishes and hugs.
 
She was released, now she's BACK in the hospital

After a few days in the hospital and a bunch of tests, they tweaked her meds and released her at the end of last week. She was ok over the weekend, though sleeping a lot. She had bad chest pains last night; so bad she was crying, and she isn't a cryer. Today (Monday) back to school but in a wheelchair - not medically required, but proactive, just too many falls.

After some classes and other work, she said the chest pain was unbearable and wanted to go back to the ER, so off we went. We told everyone (for the umpteenth time) about her condition, history, etc. She was wearing a bright yellow FALL RISK bracelet. She said she had to go to the bathroom, so the nurse took down the side rail, pointed to the bathroom across the hall, and walked away. I asked DD if she needed help, and she said "no, I'm ok." Well, she wasn't ok - DD took two steps and boom, another syncope and hit her head hard, this time in the ER hallway. Yes, I should have just taken her elbow anyway....but darn it, that nurse should NOT have lowered the rail, pointed to the bathroom, and walked away, knowing DD has recurrent syncope. (She probably would have fainted anyway, just being vertical, but at least the fall could have been softened.)

She was unconscious for 3-4 minutes, and the ER doctor said she was having a seizure. So.....she has been readmitted.
 
Oh, I am so sorry for the struggle your daughter is going through. I also know the pain that you share as a mother. And as someone who worked 10 hours in a busy ED today, I am angry that a nurse was so cavalier and caused your daughter more pain. Life is tough enough without someone who is supposed to help actually makes life harder.

I hope and pray your daughter's team finds a solution for her.
 
pjrose said:
After a few days in the hospital and a bunch of tests, they tweaked her meds and released her at the end of last week. She was ok over the weekend, though sleeping a lot. She had bad chest pains last night; so bad she was crying, and she isn't a cryer. Today (Monday) back to school but in a wheelchair - not medically required, but proactive, just too many falls.

After some classes and other work, she said the chest pain was unbearable and wanted to go back to the ER, so off we went. We told everyone (for the umpteenth time) about her condition, history, etc. She was wearing a bright yellow FALL RISK bracelet. She said she had to go to the bathroom, so the nurse took down the side rail, pointed to the bathroom across the hall, and walked away. I asked DD if she needed help, and she said "no, I'm ok." Well, she wasn't ok - DD took two steps and boom, another syncope and hit her head hard, this time in the ER hallway. Yes, I should have just taken her elbow anyway....but darn it, that nurse should NOT have lowered the rail, pointed to the bathroom, and walked away, knowing DD has recurrent syncope. (She probably would have fainted anyway, just being vertical, but at least the fall could have been softened.)

She was unconscious for 3-4 minutes, and the ER doctor said she was having a seizure. So.....she has been readmitted.
Click to expand...

I am so sorry. My DD had lots of medical problems for a few years. She was diagnosed with Bipolar in 2008 and then had heart problems and fainting, broke her wrist twice and had to have it operated on. She finally got her meds right and had heart surgery to fix an electrical short. She would not even let us be there when she had the heart surgery in 2009. She was tired of being dependent on us. We lived with her for over a year thru the worst of it, then she said enough. She was still not well or totally stable. Luckily she met a guy who helped her thru things. They are married now. She is much better now, but still very much resents anything she perceives as interference. Touchy! It sounds like you have to deal with that also. You want to help so much, but you get pushed away.
I did not get to help as much as I wanted to with the wedding, but it was lovely.
Good luck with her illness and your relationship. I know it is tough!:confused:
 
pjrose said:
After a few days in the hospital and a bunch of tests, they tweaked her meds and released her at the end of last week. She was ok over the weekend, though sleeping a lot. She had bad chest pains last night; so bad she was crying, and she isn't a cryer. Today (Monday) back to school but in a wheelchair - not medically required, but proactive, just too many falls.

After some classes and other work, she said the chest pain was unbearable and wanted to go back to the ER, so off we went. We told everyone (for the umpteenth time) about her condition, history, etc. She was wearing a bright yellow FALL RISK bracelet. She said she had to go to the bathroom, so the nurse took down the side rail, pointed to the bathroom across the hall, and walked away. I asked DD if she needed help, and she said "no, I'm ok." Well, she wasn't ok - DD took two steps and boom, another syncope and hit her head hard, this time in the ER hallway. Yes, I should have just taken her elbow anyway....but darn it, that nurse should NOT have lowered the rail, pointed to the bathroom, and walked away, knowing DD has recurrent syncope. (She probably would have fainted anyway, just being vertical, but at least the fall could have been softened.)

She was unconscious for 3-4 minutes, and the ER doctor said she was having a seizure. So.....she has been readmitted.
Click to expand...

My thoughts and prayers are with you.
 
Sorry to hear this. Totally stinks.

H
 
Maybe that is good news as well?

Perhaps her syncopal episodes are really seizures. Those can be treated. Maybe theyf inally figured out what is wrong? :shrug:
 
Oh my, this is getting really bad. Beyond scary, it must be so frustrating - the condition itself, and now the medical community. Prayers for you all.
 
This is heart-breaking --- what in the world is an ER nurse thinking!!!

I hope that they get this mystery unraveled so that your daughter can get stabilized.

elaine
 
Another syncope in parking lot outside of ER. More imaging, all negative. Seeing cardio for follow-up tomorrow.
 
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