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DD in hospital

pjrose

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As many of you know, DD (19) has frequent syncopes (fainting, unconscious); 58 so far in about four years.

She has been living at home again (yay!) since mid-January and is back in school, has a great new bf, and was ok for about a month. However, she's had five syncopes in the last few weeks, including at least one bad concussion.

When she landed in the ER again yesterday they decided to admit her and have her evaluated by a neurologist today. (She last saw a neurologist about 4 years ago; everything seemed ok then, but maybe something will show up now.)

As always, incense, prayers, hugs, and good thoughts are appreciated (but I'm trying to stay away from the chocolate).
 

neash

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Prayers for you and your daughter. Hope they figure out the root cause of her syncopes this time, so they can start treatment.
 

SueDonJ

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Good thoughts are with your daughter and you, PJ. I hope you're able to get at least a few helpful answers to the questions that you've been asking for such a long time. :)
 

presley

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I hope they can pinpoint something this time. Sorry to hear that she is hospitalized, but it will be a blessing if they finally figure out a way to help her. Hugs.
 

hefleycatz

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:) :) :) I wish we had a smiley with its fingers crossed. also, a little chocolate wont hurt. :D

lee
 

Gracey

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Praying for knowledge that the doctors can find out what is causing these.
 

SOS8260456

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I hope they can pinpoint something this time. Sorry to hear that she is hospitalized, but it will be a blessing if they finally figure out a way to help her. Hugs.

Same from me. At least if they can pinpoint it, she can learn how to deal with it. It must be very scary not knowing when an episode will happen.
 

IreneLF

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My daughter had several syncopes and episodes of hives - (which are more serious than it might sound, each episode was different, each subsequent one was more intense than the last, painfully internal in some cases, including in her throat which could lead to inability to breathe).

Went to many specialists, and it seemed impossible to diagnose, until I realized they centered around her menstrual cycle, either assumed date of ovulation or coincided with menstruation.
A smart GYN put her on b.c. pills continuously for as many cycles as she could (3-4 packs back to back with no days off) preventing the number of times a year she got her period. Somehow, the problem was solved.

Not knowing your DD's entire background, I just throw this out there for you.
Good luck. I know how hard it is when you want to find an answer to something that scares the hell out of you.
 

tlwmkw

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This sounds like POTS. Have they mentioned that? Google it for more info but it is common in young women. Hope you find a way to deal with this more effectively.

tlwmkw
 
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tlwmkw

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In my previous post in this thread I meant to put POTS not POTTS. Sorry for the confusion since it is quite a different thing. (It stands for Postural Orthostatic something or other Syndrome)- I know someone of a similar age who has this and it does sound very similar to what you are describing. Make sure they have checked for this.

Edited to add: I worked out how to edit the post so it is correct now!

tlwmkw
 

pjrose

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She doesn't have POTS - that is related to standing, but not all of hers are standing; she's slid out of chairs too. She doesn't fit the pattern. I've been told that the treatment is basically the same whether they diagnose it as POTS, vasovagal, or neurocardiogenic - meds to up the BP, lots of fluids and also salt food to increase the blood volume, and avoid triggers.

The suggestion about being related to her cycle is an interesting one; she was on the depo provera shot for a few years, so never had periods, but still had syncopes (fewer mood swings though!). I'll ask about that.

She told us that the neurologist said her brain is swollen, neck stiff, and she is walking funny. Her HR is down to 40-something. They're upping one of her meds, and keeping her another night.

We're not getting as much detail as we'd like 'cause we're not there, but she wants to handle this herself because she says we drive her crazy :rolleyes: (That can go both ways.....)
 
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IngridN

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. . .
We're not getting as much detail as we'd like 'cause we're not there, but she wants to handle this herself because she says we drive her crazy :rolleyes: (That can go both ways.....)

Lots of hugs and prayers coming your way.

I would suggest that you approach her with the following...when I had my cancer scare and when DH was diagnosed w/diabetes, we like to have the other one sit in on the doctor appts because the other person will hear something the patient missed, ask questions that the patient didn't think of asking, and the like. Not to intrude on her life and the need for her to handle this by herself, but to assist her.

Ingrid
 

Rose Pink

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Lots of hugs, PJ. It seemed like things were finally starting to look up--and hopefully, they will again.

I'll keep you and your DD in my heart and in my prayers.
 

Liz Wolf-Spada

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Prayers that she is safe and for a thorough diagnosis. Prayers for you as you go through this with her.
 

Passepartout

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{{{HUGS}}} Chocolate, pixie dust, wine, whatever gives you support. We hope that this time the neurologist can come up with a cause and a treatment. You guys will remain in our thoughts and hearts.

Jim
 

heathpack

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Get Well Soon

IMG_1292.jpg


Just read today that looking at images of nature is beneficial to ones health. So here's the lily pond at Mission San Juan Capistrano.

Thinking of you!

H
 

jme

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rather than offering pixie dust and good thoughts, may the God of Peace bless your daughter, your family, and the doctors who evaluate and treat her. He alone knows every cell in her body.....after all He created her.

and He alone has the power to heal according to the plan he holds for her and for us all..... please keep us informed, and those who know Him will continue to pray for her continually, for her full recovery and subsequent effectual treatment.
... the rest is worthless. "For I know whom I hath believed..." sorry, just had to say... marty (jme)
 

BevL

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Always something, isn't it? And no matter how old they, it's always hard when our children are struggling.

Thinking good thoughts and will be checking in for progress.

Bev
 

post-it

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I so sorry. I'll be praying for her, and for a diagnosis so she can move forward and heal.
 

2Blessed

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rather than offering pixie dust and good thoughts, may the God of Peace bless your daughter, your family, and the doctors who evaluate and treat her. He alone knows every cell in her body.....after all He created her.

and He alone has the power to heal according to the plan he holds for her and for us all..... please keep us informed, and those who know Him will continue to pray for her continually, for her full recovery and subsequent effectual treatment.
... the rest is worthless. "For I know whom I hath believed..." sorry, just had to say... marty (jme)

Amen! My thoughts exactly Marty.
 

isisdave

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There was also a story on NPR a couple of days ago about a man who had attacks that were somewhat similar. His body would collapse and "go to sleep" although I think he remained conscious. It made me think about your daughter, although I think you've said in the past that a blood pressure crash has been documented, so it's not likely to be anything similar.

The diagnosis was narcolepsy with cataplexy, and it is triggered by positive emotion. He can get an attack by petting a puppy, and a visit from his grandchild immediately knocks him out. He insisted on going to his brother's wedding, so they just propped him up against a wall. Apparently his family is used to this.

He does have some medicine that will slow down an attack, so that instead of keeling over he has several minutes to find a convenient place. THAT piece of information made me think of your DD again... seems like the fall is more of a problem than the loss of consciousness.
 
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