Multiple Myeloma

[Hophop4]

Thanks all,

I think it helped me too by posting and also reading all the replies. It kept me going through all this. I probably won't have any more updates to report for a month or so but I will post when I do.

 

[Htoo0]

Well, you can still check in on us!

 

[funtime]

donor found!

In my last post, I mentioned that there are bone marrow drives locally and that we just had one here in Dallas at Northpark mall. I saw in the paper that that drive resulted in several hundred new bone marrow donors and the woman in whose name the drive was set up also found a donor so these are good things to be on the lookout for in your community. Funtime

 

[Hophop4]

Update Time

Hi all,

Just thought I would post a short update. I am feeling pretty good now and getting around. I am scheduled to go back to MDA for a Bone Marrow Biopsy and a Bone Density Survey Xrays on June 9th and a visit with the Doc on June 11th for the results. I am taking extra meds for anti-bacteria and virus. Still no pool, beach water and they added no bath tub. That's it for now.

 

[Kay H]

Thanks for checking in. At least it sounds as if nothing is any worse. Good luck with your test results. You are still in my prayers.

 

[SueDonJ]

Hi all,

Just thought I would post a short update. I am feeling pretty good now and getting around. I am scheduled to go back to MDA for a Bone Marrow Biopsy and a Bone Density Survey Xrays on June 9th and a visit with the Doc on June 11th for the results. I am taking extra meds for anti-bacteria and virus. Still no pool, beach water and they added no bath tub. That's it for now.

Let us know when they tell you no showers either - we'll be sure to stand 3 feet further back and won't insult you by crinkling our noses.

It's great to hear that you're feeling good. Thanks for the update, and here's to continued success....

 

[Hophop4]

Let us know when they tell you no showers either - we'll be sure to stand 3 feet further back and won't insult you by crinkling our noses.

It's great to hear that you're feeling good. Thanks for the update, and here's to continued success....

You made me laugh. I was hoping to get in the tub since I can not get in the pool. The water is good for my back since I had the spine surgery. And we are going to Seaside in Galveston May 30 for the week and I got a Presidential with the big jacuzzi tub.

 

[Beaglemom3]

HopHop,
How are you doing ?

PM me if you get back this way. Millennium sometimes hosts a social event for those Velcade users.

I have an extra week or two if you'd like (free).

Oh, mind your nurses !

Thinking of you,
B.

 

[Cathyb]

Beaglemom -- that is very nice of you -- Tuggers are great people

 

[Beaglemom3]

Beaglemom -- that is very nice of you -- Tuggers are great people

Oh, anything for a "local" boy and Red Sox fan.

He was doubly invited on both forums - that's the beauty of timesharing folks.

 

[Beaglemom3]

I worked for Millennium Pharmaceuticals and we are very proud of the efficaciousness of Velcade and very protective of the patients who have used it.

 

[barndweller]

Just catching up on your progress, Hop. Wishing you a full recovery and sending lots of positive thoughts your way from out in the west. If prayers from Tuggers and TS4Ms members will speed your healing then you will be back to full speed in no time.

Hugs, from Julie in the Barn

 

[Hophop4]

HopHop,
How are you doing ?

PM me if you get back this way. Millennium sometimes hosts a social event for those Velcade users.

I have an extra week or two if you'd like (free).

Oh, mind your nurses !

Thinking of you,
B.

I would love to make a trip back there, it has been so long but I can't fly. I still have to be careful where I go. If I hadn't had the transplant I would have been up there last month. Day after I got out of the hospital my cousin passed away down in Florida and the funeral was in Lowell, MA. but I couldn't go. I have some relatives I would like to visit. I have an aunt in Marlboro who is 101 years old and another cousin who is 89 in Webster and many many more.

Thanks for the weeks offers. I have plenty of weeks, I just can't go far to use them. We are using one next week to go to Galveston. We have our Landmark, Panama City Beach coming up July 4th. We will drive there and I will be sitting out on the balcony watching the waves come in and seeing the fireworks!!

Everyone have a nice Memorial weekend and stay safe.

 

[Hophop4]

Update... We All Waiting For

Well here is the news:

On Tuesday, I had Blood Tests, Bone Density Survey Scan and Bone Marrow Biopsy. Today, I went back to MDA for Doctor's Appointment to get all the results. Blood Tests were good. Bone Density looked good also which means I do not have to start back on Aredia treatments once a month to strengthen the bones but will have another scan in one year to see how it goes. Bone Marrow Biopsy came back normal and I am in 100% REMISSION. There is a possiblity that the myeloma can come back but let's hope not for a long long time or never. I go back in 3 months. I will be having follow up visits with my original doctor next week who will put me on maintenance treatment (pills).

I am ready for my Florida July Vacation coming up.

 

[SueDonJ]

... 100% REMISSION

Oh my, that is absolutely GREAT news! I am thrilled for you and your family. Now go on out there and enjoy life!

 

[Kay H]

Oh Hop, that is great news. Make the best of iy.

 

[jgirvine]

Wonderful news. Congrats.

 

[lamb]

Wishing you continued remission and joyful moments each day!

Linda

 

[Htoo0]

Fantastic! Hope things continue to go well! :whoopie:

 

[MULTIZ321]

Hop,

That's great news! Thanks for letting us join you on your journey to recovery.
You're an inspiration to us.

Richard

 

[funtime]

Way to go! I am very happy for you. Funtime

 

[Hophop4]

Thanks again to all who have posted on here. Doc told me I can walk in the water at the beach and sit by the pool but not to get water splashed on my face for now. So that's a start.

 

[dmharris]

Hop,

God is Good! Continued good health news!

 

[Zac495]

Oh my gosh! I am THRILLED for you. I didn't see this thread when you were going through this earlier - so I started reading from the beginning, not knowing the end until now. What fabulous news -and what a strong person you are!! I want to hear all about your vacation!

 

[Hophop4]

I am ready for vacation I went to see my Doctor today and he also ok'd my vacation.

My MDA doctor is now turning my treatments back to my original doctor for now and I will go back to MDA in 3 months for another checkup. I have to go on a final chemo maintenance treatment which will be Revlimid (pills) for about one year but I dont have to start that until we get back from our July 4th week vacation.