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My husband fell

Patri

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Oh rap, you really are in a serious situation. It appears to be time to turn over DHs care to others. You will come to see how much your life has been subdued as you devoted all your energies to him. You will be able to breathe again. Please consider a facility for DH or lots of in-home care. In both scenarios you are demonstrating your love and commitment to that dear man.
 

Passepartout

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Hoping for the best for you both. At least now he's in the hands of professionals, with training and access to resources that can help both of you get on your feet and move forward to a more sustainable living situation.
I know it's hard right now, but stay positive. It will all work out. Just in case, here's a giant TUG {{{{HUG}}} for you!

Jim
 

GrayFal

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I am hospital now. He was screaming in pain and they are admitting him to hospital tonight and maybe to rehab facility
Reminder....you do NOT have to take him home. Insist on rehab facility. You can not safely care for him. Key word to emphasis is UNSAFE.
Praying for you both.
 

twise625

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I am hospital now. He was screaming in pain and they are admitting him to hospital tonight and maybe to rehab facility

I went through something like this (need for rehab, but not with the dementia added on) recently with both my mother in law and my father. To qualify for rehab they generally need to require 3 therapies, I believe, and be expected to be able to participate in therapy and improve function. Neither my MIL or father qualified for rehab (MIL with terminal cancer and broken hip, father post stroke and open heart surgery). Instead, they were approved for a lesser level of care in a skilled nursing facility, which was covered by Medicare for a period of time. In both cases, however, I had to get involved and insist that the discharge planning involve further inpatient care - both my MIL and father wanted to go home but were not able to do basics like get up and down, get to bathroom, etc.

Even at the skilled nursing facility, however, Medicare would only continue to cover the care if they were active in therapy and making progress to get discharged (there are # of day limits as well). If they are not able to meet the qualifications for coverage, then you either have to take them home or become private-pay, regardless of whether or not they are independent with their activities of daily living. My mother was not able to physically handle my father's care. It was not safe for him to remain at home, so we began talking to the social worker at the skilled nursing facility about applying for Medicaid coverage for him. My dad has 12 lives, I am convinced, and he pulled through and was able to go back home before we had to pull the trigger on that.

If you do not have a long-term care insurance policy that will cover dementia care in a skilled nursing facility, I suggest that it is time to see an elder care attorney to discuss your options and how best to protect your assets and get him the long-term care that he is going to need. This is such a tough situation, but it is too much for you to handle alone. After my father's stroke, we set up a trust and transferred their investments and many other assets to the trust. Our state has a 5 year look-back for transfer of assets and they apply various penalties for Medicaid eligibility. State rules are different. An elder law attorney will know how to best protect you both. My heart goes out to you in this difficult time.
 

bogey21

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If you do not have a long-term care insurance policy that will cover dementia care in a skilled nursing facility, I suggest that it is time to see an elder care attorney to discuss your options and how best to protect your assets and get him the long-term care that he is going to need. This is such a tough situation, but it is too much for you to handle alone.

I avoid attorneys like the plague but would make an exception here. Consulting with an elder care attorney is the sensible thing to do in this situation...

George
 

nerodog

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I spoke to someone at insurance and we do have some coverage but couldn’t get into our plan. I found out provider has to initiate the claim. I left a message with social worker at hospital that I want their help setting something up. First thing Monday morning I will be calling insurance. I have a name of someone who is a male who said he will help with personal care. He us not with an agency but I will try him
A Doctors order to request assistance should be helpful!
 

Passepartout

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I went through something like this (need for rehab, but not with the dementia added on) recently with both my mother in law and my father. To qualify for rehab they generally need to require 3 therapies, I believe, and be expected to be able to participate in therapy and improve function. Neither my MIL or father qualified for rehab (MIL with terminal cancer and broken hip, father post stroke and open heart surgery). Instead, they were approved for a lesser level of care in a skilled nursing facility, which was covered by Medicare for a period of time. In both cases, however, I had to get involved and insist that the discharge planning involve further inpatient care - both my MIL and father wanted to go home but were not able to do basics like get up and down, get to bathroom, etc.

Even at the skilled nursing facility, however, Medicare would only continue to cover the care if they were active in therapy and making progress to get discharged (there are # of day limits as well). If they are not able to meet the qualifications for coverage, then you either have to take them home or become private-pay, regardless of whether or not they are independent with their activities of daily living. My mother was not able to physically handle my father's care. It was not safe for him to remain at home, so we began talking to the social worker at the skilled nursing facility about applying for Medicaid coverage for him. My dad has 12 lives, I am convinced, and he pulled through and was able to go back home before we had to pull the trigger on that.

If you do not have a long-term care insurance policy that will cover dementia care in a skilled nursing facility, I suggest that it is time to see an elder care attorney to discuss your options and how best to protect your assets and get him the long-term care that he is going to need. This is such a tough situation, but it is too much for you to handle alone. After my father's stroke, we set up a trust and transferred their investments and many other assets to the trust. Our state has a 5 year look-back for transfer of assets and they apply various penalties for Medicaid eligibility. State rules are different. An elder law attorney will know how to best protect you both. My heart goes out to you in this difficult time.
The above is sensible advice. Sadly a couple of years late when it comes to Medicaid look-back, but you can't change that. Get to an elder law specialist ASAP.

Jim
 

Carron

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A Doctors order to request assistance should be helpful!
Very helpful if you have a friend/family member who works in the medical system to help you navigate through this....
 

rapmarks

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apparently it is extremely difficult to find a place at a skilled nursing facility
 

Cornell

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After my divorce 21 years ago at age 65 I decided to make sure my kids would never have to go through this kind of thing with me. I moved into a CCRC (Continuing Care Retirement Community). My status has been (and for that matter still is) Independent Living. It is no different than living in a apartment with meals provided. It is kind of like living in a community with 400 neighbors, many of which have become good friends. If physically I ever get into a situation like we are discussing here I will be moved to the Assisted Living Floor and be a burden to no one but the paid Caregivers...

Note that we have a number of couples here where one requires round the clock assistance. In that case that individual is moved to Assisted Living and their spouse continues on in Independent Living in their Apartment...

I know everyone's situation is different but it is something to think about...

George
My mother did this, too, as a gift to us (her children). I sleep very well at night because of this. You are a good man.
 

Patri

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apparently it is extremely difficult to find a place at a skilled nursing facility
The only reason the nursing home took my husband was because we are private pay. They were only accepting Medicare patients for rehab otherwise, at least during covid. No Medicaid. And yes, I set up a trust two years ago. I consulted an elder care attorney. Right now she, my tax preparer, and my financial advisor are talking, and I'll meet with them soon for our plan regarding the five-year look back.
 

klpca

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Wow. So much going on. I am so sorry that you are having to deal with the avalanche of medical issues.
 

Passepartout

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apparently it is extremely difficult to find a place at a skilled nursing facility
The Social Workers at his rehab facility have resources to make this happen to coincide when he gets released. Work closely with them. It's always a surprise when the loved one hits that magic 100 or 120 days (I can't remember) or is deemed uncooperative in his care and is released. There are also Ombudsmen whose job it is to negotiate for the patient and family. Use them.

Jim
 

rapmarks

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This is for a short stay about a week and it will be covered by insurance. Yes we will he private pay when he goes in a nursing home. I do not intend to spend down, become destitute, and get him in Medicaid. There are no rooms right now for various reasons and I have been going over the list with the social worker
 

jackio

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I am so very sorry for all your troubles. I am thinking of the both of you and wishing you well.
My MIL just spent 100 days in rehab after Covid. The hospitalization left her too weak to walk and Medicare paid for rehab for 28 days. She then became a partial pay, perhaps due to her government retirement insurance. She had to pay $178/day for the remaining days. After 100 days she was going to have to go to full self-pay (several hundred dollars/day) and she was discharged, ready or not. She ended up back home with aides for now.
 

AnnaS

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I am hospital now. He was screaming in pain and they are admitting him to hospital tonight and maybe to rehab facility

He should not be sent home. You should speak to a social worker while he is at the hospital. First choice, rehab. Once you are home, much harder to get into rehab and get an aide to come home. Choice 1 - Rehab center. Choice 2 - he only comes home if social worker set's up a nurse to come and evaluate for an aide. I think all insurances cover this - it is only temporary and a few hours a day. It's a start.

Maybe you can pay someone cash for an additional few hours. Take the aide as long as the insurance pays until you have worked something else out.

I am sorry you are going through this alone. Any help/suggestions from kids?

Keeping you both in my thoughts and prayers.
 

rapmarks

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I am so very sorry for all your troubles. I am thinking of the both of you and wishing you well.
My MIL just spent 100 days in rehab after Covid. The hospitalization left her too weak to walk and Medicare paid for rehab for 28 days. She then became a partial pay, perhaps due to her government retirement insurance. She had to pay $178/day for the remaining days. After 100 days she was going to have to go to full self-pay (several hundred dollars/day) and she was discharged, ready or not. She ended up back home with aides for now.
Yes I went through all that with my parents. Basically took care of parents, in laws, and aunts from 1972 to 2014. By the time they passed away my husband had already shown many signs of dementia
 

nerodog

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Very helpful if you have a friend/family member who works in the medical system to help you navigate through this....
I am retired from the health field. True, so helpful to have someone help you navigate . Try the SW st the hospital. They will know all the vacancies in skilled nursing homes etc
 

stmartinfan

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I just want to say I'm sorry you are having to deal with all this. I know from your previous comments that you've been working hard to provide a safe, enjoyable environment for your husband as his dementia has progressed. I hope you'll be able to find a next stage for care that will work for both of you.
 

nerodog

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I am retired from the health field. True, so helpful to have someone help you navigate . Try the SW st the hospital. They will know all the vacancies in skilled nursing homes etc
Also reach out to the Alzheimer's organization in your area. They have wonderful staff with loads of information to assist you.
 
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