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Have you planned what to do if you can't care for yourself as you age? CCRC is one option.

Panina

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Have you planned what to do if you can't care for yourself as you age? CCRC is one option.

Taking care of my mom, who's in her 90s, has been quite a challenge. She's mobile but can be paranoid and stubborn, which complicates things. My sister doesn't help, she long ago distanced herself. There is no one else that would help my mom if I didn't because of her abusive nature. I often think who will help me when I get older as I have no biological children of my own. Even if I did I would not want to be a burden on them.

This past year brought some health scares for me, making me think about my future. I have a niece and a stepdaughter from my ex, and my fiancé has two kids. I really doubt any of them would be much help when I get older. Yes they would call, maybe visit occasionally but their generation (all in their 20's) is different then older generations. I am happy when they are self sufficient and thriving and worry about their future too. I’ve seen how their moms are, and I wouldn’t want them getting advice about me from them.

I trust my fiancé would take care of me, but what if he’s not around? Plus, if my sister is around, she might argue with him about everything as when we purchased a house together she said you should leave your half of the house to family, meaning hers plus I don't trust her decisions.

So, I'm wondering how to prepare if a time comes I can't take care of myself without being a burden on anyone else. I ultimately want to choose my potential path of growing older on my terms and where I want to be.

My curiosity sparked when my mom asked me to look into independent living communities. I visited a bunch and tried to share my findings with her, but she changed her mind after hearing from her sisters that they’re just places for old folks to wait to die.

Honestly, some of these places felt a bit sad, like a place you wait to die but a few, very few, were vibrant and active. I learned a lot! Some were rentals, while others were CCRCs (Continuing Care Retirement Communities that have an entrance fee) where you could get everything you need on one campus, like Independent Living, Assisted Living, Memory Care, and Long-Term Care.

Here's where it gets tricky, a bit like timeshares. CCRCs can be "A," "B," or "C." The "B" and "C" types often make claims that aren't quite accurate. You have to read the fine print in the contract to know the truth.

An "A" CCRC offers higher levels of care, if you ever need it, at the same monthly fee (plus incidentals) as Independent Living. You have to be even careful with this type too as one high end place claimed they were a pure "A" but after reading the contract if the second person in the household needed to go to long term care and you resided in the home alone you would be charged an addition $7800 over your monthly fee. This is way more than incidental charges. They also did not have assisted living on campus so if you needed this type of care and were not eligible for long term care you can hire help for yourself in your home from them that you pay for on top of your monthly fee.

A "B" CCRC gives a discount for higher levels of care, but it ends up being much more than the Independent Living monthly fee. For example one place had assisted living but if you needed long term care they chose the place for you and they only provided $2000 a month and you were responsible for the rest.

A "C" CCRC means you pay the regular rate for higher levels of care.

Salespeople for "B" and "C" types push the idea that you shouldn’t pay more for services you might not need. It reminds me of those sketchy timeshare sales tactics. Most of us over 65 will likely need more care at some point, plus, "A" CCRCs were often more affordable than "B" and "C" types, partly because of their not-for-profit status versus profit status. Every "A" I visited had a benevolent fund to ensure you'd still be cared for if you ran out of money out of no fault of your own.

For all types, the entrance fee $ return if you move out of the community or if you pass, ranges from your you/your estate receiving nothing back to up to 90% back. For those having an amount back many only went up to 50%. For those offering money back the entry fee was much higher sometimes almost double. Just putting the difference in the bank you can in many scenarios over the years accumulate more from investment. What the percentage money back option protects you from is if you are unhappy and want to move you will have equity. Usually the calculation is 5% is taken off the top as an administrative fee and than the % amount is calculated but,and this is a big but, most stipulate they have either have two years to give you the money or you have to wait until they found another person who wants your unit.

So far, I've seen just one community I’d consider moving to sooner than later. The average age there is in the early 70s. Other communities I checked out had average ages in the mid 80s. This one felt like living in a luxury resort, multiple pools, pickleball, an art center for shows, 7 restaurants, movie theatre, high end exercise room, fitness classes, learning classes, art studio, wood shop, stained glass studio, local trips, vacation trips, the list goes on and on, all renovated modernly.

I’ll take my time to learn everything I need to make a smart choice. Just like with timeshares, it’s important to know what you’re getting into, read the fine print—when it’s good, it’s great, and when it’s bad, you’ll wish you hadn’t signed up!
 
Have you planned what to do if you can't care for yourself as you age? CCRC is one option.

Taking care of my mom, who's in her 90s, has been quite a challenge. She's mobile but can be paranoid and stubborn, which complicates things. My sister doesn't help, she long ago distanced herself. There is no one else that would help my mom if I didn't because of her abusive nature. I often think who will help me when I get older as I have no biological children of my own. Even if I did I would not want to be a burden on them.

This past year brought some health scares for me, making me think about my future. I have a niece and a stepdaughter from my ex, and my fiancé has two kids. I really doubt any of them would be much help when I get older. Yes they would call, maybe visit occasionally but their generation (all in their 20's) is different then older generations. I am happy when they are self sufficient and thriving and worry about their future too. I’ve seen how their moms are, and I wouldn’t want them getting advice about me from them.

I trust my fiancé would take care of me, but what if he’s not around? Plus, if my sister is around, she might argue with him about everything as when we purchased a house together she said you should leave your half of the house to family, meaning hers plus I don't trust her decisions.

So, I'm wondering how to prepare if a time comes I can't take care of myself without being a burden on anyone else. I ultimately want to choose my potential path of growing older on my terms and where I want to be.

My curiosity sparked when my mom asked me to look into independent living communities. I visited a bunch and tried to share my findings with her, but she changed her mind after hearing from her sisters that they’re just places for old folks to wait to die.

Honestly, some of these places felt a bit sad, like a place you wait to die but a few, very few, were vibrant and active. I learned a lot! Some were rentals, while others were CCRCs (Continuing Care Retirement Communities that have an entrance fee) where you could get everything you need on one campus, like Independent Living, Assisted Living, Memory Care, and Long-Term Care.

Here's where it gets tricky, a bit like timeshares. CCRCs can be "A," "B," or "C." The "B" and "C" types often make claims that aren't quite accurate. You have to read the fine print in the contract to know the truth.

An "A" CCRC offers higher levels of care, if you ever need it, at the same monthly fee (plus incidentals) as Independent Living. You have to be even careful with this type too as one high end place claimed they were a pure "A" but after reading the contract if the second person in the household needed to go to long term care and you resided in the home alone you would be charged an addition $7800 over your monthly fee. This is way more than incidental charges. They also did not have assisted living on campus so if you needed this type of care and were not eligible for long term care you can hire help for yourself in your home from them that you pay for on top of your monthly fee.

A "B" CCRC gives a discount for higher levels of care, but it ends up being much more than the Independent Living monthly fee. For example one place had assisted living but if you needed long term care they chose the place for you and they only provided $2000 a month and you were responsible for the rest.

A "C" CCRC means you pay the regular rate for higher levels of care.

Salespeople for "B" and "C" types push the idea that you shouldn’t pay more for services you might not need. It reminds me of those sketchy timeshare sales tactics. Most of us over 65 will likely need more care at some point, plus, "A" CCRCs were often more affordable than "B" and "C" types, partly because of their not-for-profit status versus profit status. Every "A" I visited had a benevolent fund to ensure you'd still be cared for if you ran out of money out of no fault of your own.

For all types, the entrance fee $ return if you move out of the community or if you pass, ranges from your you/your estate receiving nothing back to up to 90% back. For those having an amount back many only went up to 50%. For those offering money back the entry fee was much higher sometimes almost double. Just putting the difference in the bank you can in many scenarios over the years accumulate more from investment. What the percentage money back option protects you from is if you are unhappy and want to move you will have equity. Usually the calculation is 5% is taken off the top as an administrative fee and than the % amount is calculated but,and this is a big but, most stipulate they have either have two years to give you the money or you have to wait until they found another person who wants your unit.

So far, I've seen just one community I’d consider moving to sooner than later. The average age there is in the early 70s. Other communities I checked out had average ages in the mid 80s. This one felt like living in a luxury resort, multiple pools, pickleball, an art center for shows, 7 restaurants, movie theatre, high end exercise room, fitness classes, learning classes, art studio, wood shop, stained glass studio, local trips, vacation trips, the list goes on and on, all renovated modernly.

I’ll take my time to learn everything I need to make a smart choice. Just like with timeshares, it’s important to know what you’re getting into, read the fine print—when it’s good, it’s great, and when it’s bad, you’ll wish you hadn’t signed up!

That is a lot of info. I've never been to an assisted retirement community to see what it's about. If I were to choose one it would definitely be somewhere warm.

Bill
 
A recent article about an elderly couple who did everything they could to prepare for aging. They bought into a CCRC and the wife died with Alzheimer’s. The 95 yo old father needed nursing home but was told there was a long waiting list. He had to go elsewhere into a fine looking place that had terrible to no care. This cost him $9000 a month. He died after choking on a waffle at breakfast. The family was attempting to sue.
 
If you haven't definitely do a TUG search on "CCRC" to see some of the previous discussions





 
This is so timely. Our women’s book club, all seniors , just finished reading The Secret Diary of Hendrik Groen, Age 83, about a “memoir “ about a man living in a senior independent living place in the Netherlands. Somewhat depressing, somewhat humorous, we all agreed the message was social support and friends made the difference in your ability to age well.
Only one of our group lives in a senior independent living place and she moved in a year ago. One reason she loves it is that is a monthly rental, in a location that she likes, with a very friendly active group of residents in her hallway and she likes the food. She has no children nearby, and her sister was tired of always being on call when she lived alone.

She told us those most of the facts stated in Penina’s post.

What we all realized was that we need to start learning and checking out our options now, before something happens and we are too old, too sick, too overwhelmed to be able to make a good choice.
 
We looked at a retirement apartment that had CCRC options available that did not require a "buy in", but the monthly rent was pretty pricey ($3,500/mo for a 2br) and you had to pay a monthly fee for the facilities, which included a number of meals/month from the restaurant. Add that you would have to pay for indoor or covered reserved parking on top of that.

I don't think that I would mind living in an apartment in that type of facility, but DW would not be happy in any apartment.
 
This is a subject I am looking forward to get educated on. Thanks for bringing it up.
I figured I would share what I know for those who are interest. The whole CCRC is very complicated. Easy to get taken in to the wrong one thinking you have benefits you don't.
 
A recent article about an elderly couple who did everything they could to prepare for aging. They bought into a CCRC and the wife died with Alzheimer’s. The 95 yo old father needed nursing home but was told there was a long waiting list. He had to go elsewhere into a fine looking place that had terrible to no care. This cost him $9000 a month. He died after choking on a waffle at breakfast. The family was attempting to sue.
How horrible. That is why I am sharing. It is so easy to buy into one that does not offer what you need when the time comes. The fine print says it all.
 
If you haven't definitely do a TUG search on "CCRC" to see some of the previous discussions





Thank You
 
We looked at a retirement apartment that had CCRC options available that did not require a "buy in", but the monthly rent was pretty pricey ($3,500/mo for a 2br) and you had to pay a monthly fee for the facilities, which included a number of meals/month from the restaurant. Add that you would have to pay for indoor or covered reserved parking on top of that.

I don't think that I would mind living in an apartment in that type of facility, but DW would not be happy in any apartment.
The ones that don't require a buy in you pay full cost if you need higher levels of care. I saw one Independent living community with a beautiful detached home. The average age was too old for me. Many are now adding detached homes to their campus if they have the land, popular with baby boomers.
 
Panina, our buy in to Reata Glen in Rancho Mission Viejo, CA in November 2021 allowed us a “no money back” option for a lesser price. We don’t have kids, so no need to worry about getting money back. We’ve been here 3.5 years and love it. Best thing we could have done to keep us safe and comfortable in our advancing years. Doctor just wrote me a prescription for physical therapy for my back — I just have to walk down the hall a bit to the therapist’s office. I am 69 (there is one resident about my age, and one a bit younger) and Cliff is 87. Our friends range from 77ish to 93. All indications are that Cliff will end up in memory care. When he does we’ll pay $500 per month more to cover the 3 meals per day mandated by the state (one meal is all that is required in independent living).
 
Panina, our buy in to Reata Glen in Rancho Mission Viejo, CA in November 2021 allowed us a “no money back” option for a lesser price. We don’t have kids, so no need to worry about getting money back. We’ve been here 3.5 years and love it. Best thing we could have done to keep us safe and comfortable in our advancing years. Doctor just wrote me a prescription for physical therapy for my back — I just have to walk down the hall a bit to the therapist’s office. I am 69 (there is one resident about my age, and one a bit younger) and Cliff is 87. Our friends range from 77ish to 93. All indications are that Cliff will end up in memory care. When he does we’ll pay $500 per month more to cover the 3 meals per day mandated by the state (one meal is all that is required in independent living).
I looked online at your community. It is lovely. The views are stunning and the amenities look top notch. I can see why you chose it. $500 per month more is less than it is here. The least I found was $1100 a month more for the extra meals and incidentals as they call it but still very reasonable if one needs that level of care. The community I am considering recently added a tower of 148 units which sold out in 6 month to an average age of 70 bringing the whole community average age to 74. It is good to know that someone in my age category loves living in IL. This community also has a no money back option, actually declining to 0 over 4 years. I am in the same situation as you, no kids, so that will be an option too.
 
Have you planned what to do if you can't care for yourself as you age? CCRC is one option.

Taking care of my mom, who's in her 90s, has been quite a challenge. She's mobile but can be paranoid and stubborn, which complicates things. My sister doesn't help, she long ago distanced herself. There is no one else that would help my mom if I didn't because of her abusive nature. I often think who will help me when I get older as I have no biological children of my own. Even if I did I would not want to be a burden on them.

This past year brought some health scares for me, making me think about my future. I have a niece and a stepdaughter from my ex, and my fiancé has two kids. I really doubt any of them would be much help when I get older. Yes they would call, maybe visit occasionally but their generation (all in their 20's) is different then older generations. I am happy when they are self sufficient and thriving and worry about their future too. I’ve seen how their moms are, and I wouldn’t want them getting advice about me from them.

I trust my fiancé would take care of me, but what if he’s not around? Plus, if my sister is around, she might argue with him about everything as when we purchased a house together she said you should leave your half of the house to family, meaning hers plus I don't trust her decisions.

So, I'm wondering how to prepare if a time comes I can't take care of myself without being a burden on anyone else. I ultimately want to choose my potential path of growing older on my terms and where I want to be.

My curiosity sparked when my mom asked me to look into independent living communities. I visited a bunch and tried to share my findings with her, but she changed her mind after hearing from her sisters that they’re just places for old folks to wait to die.

Honestly, some of these places felt a bit sad, like a place you wait to die but a few, very few, were vibrant and active. I learned a lot! Some were rentals, while others were CCRCs (Continuing Care Retirement Communities that have an entrance fee) where you could get everything you need on one campus, like Independent Living, Assisted Living, Memory Care, and Long-Term Care.

Here's where it gets tricky, a bit like timeshares. CCRCs can be "A," "B," or "C." The "B" and "C" types often make claims that aren't quite accurate. You have to read the fine print in the contract to know the truth.

An "A" CCRC offers higher levels of care, if you ever need it, at the same monthly fee (plus incidentals) as Independent Living. You have to be even careful with this type too as one high end place claimed they were a pure "A" but after reading the contract if the second person in the household needed to go to long term care and you resided in the home alone you would be charged an addition $7800 over your monthly fee. This is way more than incidental charges. They also did not have assisted living on campus so if you needed this type of care and were not eligible for long term care you can hire help for yourself in your home from them that you pay for on top of your monthly fee.

A "B" CCRC gives a discount for higher levels of care, but it ends up being much more than the Independent Living monthly fee. For example one place had assisted living but if you needed long term care they chose the place for you and they only provided $2000 a month and you were responsible for the rest.

A "C" CCRC means you pay the regular rate for higher levels of care.

Salespeople for "B" and "C" types push the idea that you shouldn’t pay more for services you might not need. It reminds me of those sketchy timeshare sales tactics. Most of us over 65 will likely need more care at some point, plus, "A" CCRCs were often more affordable than "B" and "C" types, partly because of their not-for-profit status versus profit status. Every "A" I visited had a benevolent fund to ensure you'd still be cared for if you ran out of money out of no fault of your own.

For all types, the entrance fee $ return if you move out of the community or if you pass, ranges from your you/your estate receiving nothing back to up to 90% back. For those having an amount back many only went up to 50%. For those offering money back the entry fee was much higher sometimes almost double. Just putting the difference in the bank you can in many scenarios over the years accumulate more from investment. What the percentage money back option protects you from is if you are unhappy and want to move you will have equity. Usually the calculation is 5% is taken off the top as an administrative fee and than the % amount is calculated but,and this is a big but, most stipulate they have either have two years to give you the money or you have to wait until they found another person who wants your unit.

So far, I've seen just one community I’d consider moving to sooner than later. The average age there is in the early 70s. Other communities I checked out had average ages in the mid 80s. This one felt like living in a luxury resort, multiple pools, pickleball, an art center for shows, 7 restaurants, movie theatre, high end exercise room, fitness classes, learning classes, art studio, wood shop, stained glass studio, local trips, vacation trips, the list goes on and on, all renovated modernly.

I’ll take my time to learn everything I need to make a smart choice. Just like with timeshares, it’s important to know what you’re getting into, read the fine print—when it’s good, it’s great, and when it’s bad, you’ll wish you hadn’t signed up!
Did your 'investigation' take place in your mom's geographical location -- or yours?
 
When my step mother chose to live in Assisted Living, we already had a family member who had done the research and it was an easy decision to follow her there. She spent several happy years in a one bedroom apartment. As her mental state declined, she was relocated to the 'locked' facility in a small room that was shared with another woman. I was shocked the first time I visited her in the new room -- knowing that her monthly fee had increased 50%. I guess that confirms that manpower (meaning more care is needed) is more expensive than real estate in such situations.
 
Previously my plan was to be rolled out in a wheelchair on a beachfront cliff and forget to set the break.
But the only person who agreed to be a part of the plan, my husband, has since died.
So, no plan currently in place, but on my list of things to do.
 
I can't even bear to begin telling you the nightmares of the two of three facilities my now 103 year old mother has been in over the last year. First for re-hab at two and now for long term care. All three offer independent living, assisted living, memory care and long term care (nursing). One was non-profit church affiliated and the facility was like a five start hotel. The care was much better too but because Mother went there for re-hab and they determined she could not improve they discharged her and had a six month waiting list for long term care. She had not bought into their plan so we had to move her. The other two have been pretty bad. It's the little things that are so frustrating. At $15,700 a month one would think the care would be better. Sadly, those who are paid the least spend the most time with Mother and have the least pleasant jobs. Many just try to do as little as they possibly can and then do it roughly and poorly. It breaks my heart and the guilt of having to have her there eats me up.
 
Did your 'investigation' take place in your mom's geographical location -- or yours?
I moved my mom down to Florida near me from New York a few years ago into a nice 55+ community. While trying to adjust she asked about Independent Living communities so the research was near my location.
 
I can't even bear to begin telling you the nightmares of the two of three facilities my now 103 year old mother has been in over the last year. First for re-hab at two and now for long term care. All three offer independent living, assisted living, memory care and long term care (nursing). One was non-profit church affiliated and the facility was like a five start hotel. The care was much better too but because Mother went there for re-hab and they determined she could not improve they discharged her and had a six month waiting list for long term care. She had not bought into their plan so we had to move her. The other two have been pretty bad. It's the little things that are so frustrating. At $15,700 a month one would think the care would be better. Sadly, those who are paid the least spend the most time with Mother and have the least pleasant jobs. Many just try to do as little as they possibly can and then do it roughly and poorly. It breaks my heart and the guilt of having to have her there eats me up.
I have been where you are with my dad. He was in a Nursing Home for his last few years. You can only do the best you can do. There comes a time we just are not able to do what we want to do and than have to try to get them the best care we can, which is often not as good as we want for them. I am not a deeply religious person but do believe in a higher power. A man of faith once told me, be kind, do the best you can and than release it to the Lords hands. This has helped me very much.

The fact that the care was better in non-profit affiliated facility does show there are better places if we plan. I think those of us that have elders that didn't plan and needed this higher level of care understand and think about the what if for ourselves.
 
I am younger than my husband by 14 years and it is likely that I will outlive him. My son wants me to move in with him when that happens but his home is too small and he does not want to move out of California. We will have a real discussion then because it would be mean that I would move back to California and buy a larger home if he is willing to move out of his home and live in my home. If he doesn't, then I will stay put. My life is pretty good here, golf 4 to 5 times a week and have friends whom we can call upon if in need. I live in a close knit community and there are many great people who would check in on people who live alone and are dying/unwell. I also have a very generous LTCI policy which I will tap into if I need significant care. The other fortunate part is that there has been no one in my family/blood line with dementia or cancer. I know that is pretty rare but it also probably means that I will still be cognize towards the end.
 
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My mom moved into a CCRC in my town, after having some health scares where she was living in Maine (a 20 hr drive away from me) and seeing her much-older sister struggle to live in her own home in the final months of her life. She is living her best life! She recommends that it is best to move *before* you think you need it, because you will be more able to take advantage of the ample social amenities and opportunities. She is in an independent living apartment (a full one-bedroom, with some of her own outdoor space off a patio,) but there are studios, two bedrooms, and duplexes that are more like individual houses. It is a non-profit type “A.” There is onsite memory care units, assisted living, and skilled nursing as well, and people move between them as needed.

When she was diagnosed with slow-progression Parkinson’s about a year after she moved in, she was especially grateful she made the move when she did. The assurance that she will always be cared for, outside what may or may not happen to me, relieved so much anxiety for her.
 
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When we were retiring and in the process of looking to move we did look at a couple of CCC’s and Independent Living places. But at the end of the day even our financial planner said they were very expensive with the buy in and and monthly fee, etc and to try to find something else, which is how we ended up in this HOA community.

I liked one independent living community we visited which is nearby where we live because they were nice sized individual homes and everything was done for you inside and out. But it didn’t have a clubhouse or a pool. Had some trails, but that wouldn’t help me now with my back situation. We could’ve picked out a lot there and had a home built specifically for us. It was run by the non profit Deaconess.

A small CCC place we visited was ok, but it was out of the way in a rural area of the western white mountains far from shopping and so forth.

Another is in Concord and seems nice but who really knows? There’s also one right in the town we live in.

Being I worked in home health care and the medical field most of my life I know what goes on in these assisted living facilities and nursing homes and it creeps me out thinking about it. I also had to put my mom in assisted living and as nice as the place was it still had limitations and some issues. She was terminally ill and had borderline dementia and lasted just 3 months. Very expensive but thankfully she had the money.

My husband will be a tough one to convince to go to into this kind of thing. We only have our one unmarried son and let’s just say I have doubts about how much he could handle just due to the fact that he’s ignorant on how all these things work. It would be a lot on him as he has no siblings or a spouse and has to hold down a busy job in the brewery business- 6-7 days and long hours.

Even though we have a small home if something happened to my husband I could not care for everything here. High ceilings where you have to get on a ladder to change batteries in the smoke detectors or light bulbs. Mechanical stuff with the appliances, cars, etc.Things like that. It’s the little stuff.

We have wonderful neighbors, but you can’t be bothering them all the time. Many of them also are of similar age as us and the younger ones work or have kids, and their own parents, etc.

I’m actually hoping at some point there will be better assisted suicide type laws ( I know this is very controversial). Closest we have is in Vermont but you have to be terminally ill.

I badly want our son to inherit our house because I don’t see him buying one himself and this one would be perfect for him. But who knows what will be down the line.
 
Poignant topic. We have three CCRC in the area. All have good reputations, but one is outstanding. I went to an event there to learn more about it. They wouldn’t give financial info. Need to come back for an interview, share finance records, etc. No one has called to set that up, so I guess I fell through the cracks.
The units were gorgeous. They have apartments, villas, and houses. The community is very active. I could see why it is so popular. They guarantee all levels of care as you need it.
For now I am very active in my town (this place was 15 miles away) and I still work. I will stay put. My house is great as long as I am mobile and cognizant. I will never move in with my kids. Really hope to be like my elderly neighbors, who are so vibrant and independent.
 
I would like to live in my own home as long as possible (current home or condo if I downsize more in the near future). Perhaps having an aide at home with me as long as possible/can afford to, etc.

My daughter was willing/asked me if I wanted to move in with here (different state) when my husband passed last year. I said no, thank you and not ready. Too young and have my own life here. Two sons also live near me. I would only move into one of my kids' home if I had my own little apartment/separate entrance. Maybe at that. I would consider moving in with one of them/my daughter most likely when I cannot live on my own anymore. They can even have an aide for me there so they are not taking care of me 24/7.

If it's not possible, they can put me in a nursing home. I do ask that if they cannot come to see me, hire an aide to come and spend some time with me. Twice a week, a few hours. Basically, don't forget about me and oversee the care of me.
 
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